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Chronic Fatigue Syndrome Resources for Patients

U.S. Public Health Servic

NIAID Clinical Research: NIAID's research involves extensive clinical and laboratory evaluations of CFS patients to identify markers of the disease that can lead to improved diagnosis and treatment.

National Library of Medicine produces abstracts of articles from the medical and scientific literature on a computerized database called MEDLINE. To request a MEDLINE search related to CFS, contact your nearest medical library. To locate a regional medical library call: 1-800-338-7657.

Centers for Disease Control and Prevention offers free information materials on CFS and CDC-sponsored CFS research.

Centers for Disease Control and Prevention
Division of Viral Diseases
Bldg. 6, Rm. 120, Atlanta, GA 30333
Phone: (404) 639-1388 or 1-888-232-3228
World Wide Web Site: http://www.cdc.gov/ncidod/diseases/cfs/cfshome.htm

NOTE: The following groups are listed solely for your information because of their interest in chronic fatigue syndrome. This list does not constitute an endorsement of the organizations or any of their referrals, products, or services.

National CFS Patient Organizations

Chronic Fatigue and Immune Dysfunction Syndrome Association of America
P.O. Box 220398
Charlotte, NC 28222
Phone: 1-800-442-3437
World Wide Web Site: http://www.cfids.org

National Chronic Fatigue Syndrome and Fibromyalgia Association
P.O. Box 18426
Kansas City, MO 64133
Phone: (816) 313-2000

Disability Benefits

Clearinghouse on Disability Information
Office of Special Education and Rehab Services
U.S. Department of Education
Room 3132, Switzer Building
Washington, DC 20202
Phone: (202) 205-8241

U.S. Social Security Administration
Call your local social security office or
1-800-772-1213 (7:00 a.m. - 7:00 p.m. weekdays)
World Wide Web Site: http://www.ssa.gov

Social Security pays disability benefits under two programs: the Social Security Disability Insurance Program and the Supplemental Security Income (SSI) Program. Medical requirements for disability payments under both programs are the same. Eligibility for Social Security disability is based on prior work history and SSI payments are made on the basis of financial need.

National Organization of Social Security Claimants Representatives
(NOSSCR--a lawyer referral source)
Phone: 1-800-431-2804

Finding A Doctor

University-affiliated medical schools may help in locating physicians who can evaluate symptoms or who can provide an appropriate referral.

Health Professional Organization

American Association for Chronic Fatigue Syndrome
7 Van Buren Street
Albany, NY 12206
Phone: 206-521-1932
(contact: Nicolette Vajtay in Seattle)

The objectives of AACFS are to promote, stimulate and coordinate the exchange of ideas related to CFS research, patient care and treatment, and to periodically review the current CFS clinical, research, and treatment literature as well as information on CFS released by the media, for the benefit of CFS patients and interested scientists and clinicians. Clinicians as well as research and health care workers professionally engaged in CFS activities may apply for regular membership.

World Wide Web Site: http://weber.u.washington.edu/~dedra/aacfs1.html

New Jersey Chronic Fatigue Syndrome Center
University of Medicine and Dentistry
MSB H-506
185 S. Orange Avenue, University Heights
Newark, NJ 07103-2714
Phone: 973-972-5864
(contact: Dr. Benjamin Natelson)

The goals of the New Jersey CFS Center are to provide a multidisciplinary approach to the evaluation, diagnosis and treatment of persons with CFS; to perform research geared toward finding the underlying causes of CFS and the effective treatment of the debilitating symptoms associated with the illness; and to educate patients, families, health care professionals and the general public concerning research, treatment practices and coping mechanisms.

World Wide Web Site: http://www.umdnj.edu/cfsweb/CFS/

NIAID, a component of the National Institutes of Health, supports research on AIDS, tuberculosis and other infectious diseases as well as allergies and immunology.

Prepared by:
Office of Communications and Public Liaison
National Institute of Allergy and Infectious Diseases
National Institutes of Health
Bethesda, MD 20892

Public Health Service
U.S. Department of Health and Human Services
February 1998